Von Hippel-lindau Disease
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CLINICAL_TRIALS research · 2026-04-24Clinical Trial Update: Extension Study for Participants in Studies That Include Belzutifan (MK-6482-043/LITESPARK-043) [Phase 3]
Extension study update for participants in Phase 3 trials of Belzutifan (MK-6482-043 / LITESPARK-043) with ongoing recruitment.
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CLINICAL_TRIALS research · 2026-04-24Clinical Trial Update: Use of Tracking Devices to Locate Abnormalities During Invasive Procedures [NA]
NIH-sponsored clinical trial update describes a study evaluating tracking devices to locate abnormalities during invasive procedures, with e…
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CLINICAL_TRIALS research · 2026-04-23Clinical Trial Update: Belzutifan/MK-6482 for the Treatment of Advanced Pheochromocytoma/Paraganglioma (PPGL), Pancreatic Neuroendocrine Tumor (pNET), Von Hippel-Lindau (VHL) Disease-Associated Tumors, Advanced Gastrointestinal Stromal Tumor (wt GIST), or Solid Tumors With HIF-2α Related Genetic Alterations (MK-6482-015) [Phase 2]
This Phase 2 trial update covers belzutifan (MK-6482) for advanced pheochromocytoma/paraganglioma, pancreatic neuroendocrine tumors, von Hip…
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CLINICAL_TRIALS research · 2026-04-20Clinical Trial Update: Natural History and Management of Von Hippel-Lindau (VHL) Associated Pancreatic Neuroendocrine Tumors [Phase 2]
This entry describes a Phase 2 clinical trial on the natural history and management of Von Hippel-Lindau–associated pancreatic neuroendocrin…
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CLINICAL_TRIALS research · 2026-03-31Clinical Trial Update: Von Hippel-Lindau (VHL): Clinical Manifestations, Diagnosis, Management and Molecular Bases of Inherited Renal and Other Urologic Malignant Disorders
An NCI-sponsored clinical trial evaluating Von Hippel-Lindau–associated renal and other urologic malignancies, including manifestations, dia…
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CLINICAL_TRIALS research · 2026-03-31Clinical Trial Update: National Eye Institute Biorepository for Retinal Diseases
This document is a clinical trial update announcing the National Eye Institute Biorepository for Retinal Diseases, which is currently recrui…
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CLINICAL_TRIALS research · 2026-03-30Clinical Trial Update: Study of Brain and Spinal Cord Tumor Growth and Cyst Development in Patients With Von Hippel Lindau Disease
Clinical trial update on a study of brain and spinal cord tumor growth and cyst development in Von Hippel-Lindau disease patients, currently…
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CLINICAL_TRIALS research · 2026-03-09Clinical Trial Update: CAT-VHL Exploring the Role of Carbonic Anhydrase IX as Diagnostic and Theranostic Target in Von-Hippel Lindau Disease [Phase 2]
Phase 2 clinical trial CAT-VHL is investigating carbonic anhydrase IX as a diagnostic and theranostic target in Von Hippel-Lindau disease.
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CLINICAL_TRIALS research · 2026-02-05Clinical Trial Update: Retrospective Case Series of Trans-scleral Cryotherapy for Retinal Hemangioblastoma
This document reports a retrospective case-series evaluating trans-scleral cryotherapy for retinal hemangioblastoma in Von Hippel-Lindau dis…
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CLINICAL_TRIALS research · 2026-01-28Clinical Trial Update: Quality of Life, Psychological Impact, and Care-related Challenges in Patients Affected by Von Hippel-Lindau Syndrome.
This study investigates the quality of life, psychological impact, and care-related challenges faced by people with Von Hippel-Lindau diseas…
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CLINICAL_TRIALS research · 2026-01-14Clinical Trial Update: Institutional Registry of Rare Diseases
An institutional registry for rare diseases sponsored by Hospital Italiano de Buenos Aires is currently recruiting. The registry includes am…
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CLINICAL_TRIALS research · 2025-11-20Clinical Trial Update: Data Collection Protocol for Patients With Von Hippel Lindau Disease
MD Anderson Cancer Center is conducting a data collection protocol for patients with Von Hippel-Lindau disease and is currently recruiting.
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CLINICAL_TRIALS research · 2025-09-11Clinical Trial Update: Real-World Effectiveness and Pharmacogenetics of Belzutifan in VHL Syndrome: The BELIEVE-VHL Trial [Phase 2]
Phase 2 BELIEVE-VHL trial is assessing real-world effectiveness and pharmacogenetics of belzutifan in Von Hippel-Lindau syndrome; recruitmen…
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CLINICAL_TRIALS research · 2025-05-29Clinical Trial Update: Promoting Stress Management and Resilience Among Individuals With Von Hippel- Lindau Disease [NA]
A clinical trial update indicates that Massachusetts General Hospital is enrolling by invitation to study stress management and resilience i…
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CLINICAL_TRIALS research · 2025-05-01Clinical Trial Update: Overtaking Intra and Inter Tumoral Heterogeneity In Von Hippel-Lindau Related Renal Cancer
A clinical trial update for NCT06195150 on Von Hippel-Lindau related renal cancer (Clear Cell Renal Cell Carcinoma) at IRCCS San Raffaele, c…
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CLINICAL_TRIALS research · 2024-08-14Clinical Trial Update: A Study of HS-10516 in Patients With VHL Syndrome Associated Tumors [Phase 1]
Phase 1 trial update for HS-10516 in Von Hippel-Lindau-associated tumors, currently recruiting for VHL-deficient clear cell renal cell carci…
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CLINICAL_TRIALS research · 2024-05-06Clinical Trial Update: Visualizing Vascular Endothelial Growth Factor (VEGF) Producing Lesions in Von Hippel-Lindau Disease
This clinical trial update describes a completed University Medical Center Groningen study on visualizing VEGF-producing lesions associated …
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CLINICAL_TRIALS research · 2024-04-30Clinical Trial Update: Establishment of a Multidimensional Prediction Model for the Natural Course of VHL Disease-related Renal Cell Carcinoma
An ongoing clinical study at Peking University First Hospital to develop a multidimensional prediction model for the natural history of von …
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CLINICAL_TRIALS research · 2024-04-26Clinical Trial Update: MyVHL: Patient Natural History Study
This clinical trial update describes the MyVHL: Patient Natural History Study (NCT03749980), an observational study currently recruiting to …
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CLINICAL_TRIALS research · 2018-11-14Clinical Trial Update: Natural History and Management of Pancreatic Lesions in Von Hippel-Lindau Disease
A completed clinical trial studying the natural history and management of pancreatic lesions in patients with Von Hippel-Lindau disease, wit…
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CLINICAL_TRIALS research · 2017-05-09Clinical Trial Update: Screening for Endolymphatic Sac Tumours (ELSTs) in Von Hippel-Lindau (vHL) Patients
A clinical trial is screening for endolymphatic sac tumours in patients with Von Hippel-Lindau disease, with recruitment ongoing.
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CLINICAL_TRIALS research · 2015-11-13Clinical Trial Update: Assessment of Residual VHL Function in Tumors - Can it Predict the Patients' Individual Course of Disease?
This clinical trial update describes research on assessing residual VHL function in tumors to predict the individual course of von Hippel-Li…
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CLINICAL_TRIALS research · 2012-10-25Clinical Trial Update: Treatment of Exudative and Vasogenic Chorioretinal Diseases Including Variants of AMD and Other CNV Related Maculopathy [Phase 1, Phase 2]
Phase 1/2 clinical trial update on treatments for exudative and vasogenic chorioretinal diseases including AMD variants and other CNV-relate…