Records containing: Neurofibromatosis
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CLINICAL_TRIALS study record update · 2026-04-24A Prospective Natural History Study of Patients With Neurofibromatosis Type 2 (NF2).
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CLINICAL_TRIALS study record update · 2026-04-24Transformation of Plexiform Neurofibromas to Malignant Peripheral Nerve Sheath Tumors in Neurofibromatosis Type 1: Clinical, Histopathologic, and Genomic Analysis
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CLINICAL_TRIALS study record update · 2026-03-31Clinical and Demographic Characteristics of Adult Patients With NEurofibromatosis in RUSsia
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CLINICAL_TRIALS study record update · 2026-02-17Feasibility and Tolerability of IMLYGIC for the Treatment of Cutaneous Neurofibromas in Adults With NF1
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CLINICAL_TRIALS study record update · 2024-06-21Validation of the English Version of the Pain Interference Index and the Pain Rating Scale in Children, Adolescents, and Adults With Chronic Illness and Their Parents
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CLINICAL_TRIALS study record update · 2023-09-06GROWing Up With Rare GENEtic Syndromes ….When Children With Complex Genetic Syndromes Reach Adult Age
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CLINICAL_TRIALS study record update · 2023-05-24A Phase II Study of Cabozantinib (XL184) for Plexiform Neurofibromas in Subjects With Neurofibromatosis Type 1 in Children and Adults
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CLINICAL_TRIALS study record update · 2022-05-24A Long-term Study of NPC-12G Gel in Neurofibromatosis Type I
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CLINICAL_TRIALS study record update · 2019-09-30Acceptance and Commitment Therapy for Adolescents and Adults With Neurofibromatosis Type 1 and Chronic Pain: A Pilot Study
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CLINICAL_TRIALS study record update · 2017-07-02Pilot Study of Gleevec/Imatinib Mesylate (STI-571, NSC 716051) in Neurofibromatosis (NF1) Patient With Plexiform Neurofibromas
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CLINICAL_TRIALS study record update · 2017-04-12Pilot Study of Tasigna®/Nilotinib (AMN107) in Neurofibromatosis (NF1) Patients With Plexiform Neurofibromas
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CLINICAL_TRIALS study record update · 2017-04-04Relationship Between Psychosocial Factors, Health Literacy, Quality of Life and Satisfaction With Medical Visits in Adults With Neurofibromatosis 1, Neurofibromatosis 2, and Schwannomatosis
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CLINICAL_TRIALS study record update · 2016-06-23Resiliency Training for Patients With Neurofibromatosis Via Videoconferencing With Skype
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CLINICAL_TRIALS study record update · 2016-05-04A Pilot Study of Sutent®/Sunitinib (SU11248), an Oral Multi-Targeted Tyrosine Kinase Inhibitor in Subjects With NF-1 Plexiform Neurofibromas
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CLINICAL_TRIALS study record update · 2016-04-06Phase II Study of Gleevec/Imatinib Mesylate (STI-571, NCS 716051) in Neurofibromatosis (NF1) Patients With Plexiform Neurofibromas
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CLINICAL_TRIALS study record update · 2016-01-25Phase II Trial of Sunitinib (SU011248) in Patients With Recurrent or Inoperable Meningioma
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CLINICAL_TRIALS study record update · 2012-08-01Quality of Friendships in Children With Neurofibromatosis: Relationship to Disease Severity
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CLINICAL_TRIALS study record update · 2012-03-19Phase II Clinical Trial of Pirfenidone for the Treatment of Patients With Neurofibromatosis Type I