CLINICAL_TRIALS ClinicalTrials.gov record update

GROWing Up With Rare GENEtic Syndromes ….When Children With Complex Genetic Syndromes Reach Adult Age

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Record identity and dates

Source: ClinicalTrials.gov
Source record ID: NCT04463316
Title field or adapter rule: protocolSection.identificationModule.officialTitle
Ingested At: 2026-04-28T10:39:36.097170+00:00
Published At: 2023-09-06T00:00:00+00:00
Record Updated At: 2023-09-06
Timestamp Basis: source retrieval time was not retained by the feed adapter
Date limitation: source retrieval time was not retained by the feed adapter

protocolSection.conditionsModule.conditions: ["Prader-Willi Syndrome", "PWS-like Syndrome", "Silver Russel Syndrome", "Congenital Hypopituitarism", "Klinefelter (XXY-)Syndrome", "Congenital Adrenal Hyperplasia", "XXXXY Syndrome", "XXYY Syndrome", "XXXX Syndrome (Tetra-X Syndrome)", "Disorders of Sex Development", "Turner Syndrome", "46, XY DSD", "Tuberous Sclerosis", "Neurofibromatosis", "Albright Hereditaire Osteodystrofie", "Cornelia de Lange Syndrome", "Saethre-Chotzen Syndrome", "17p- Deletiesyndrome", "VCF Syndrome", "POLR3A Mutatie", "Ohdo Syndrome", "Jacobsen Syndrome / 11 q Syndrome", "Myrhe Syndrome", "CHARGE Syndrome", "1q25-32 Deletie", "Bardet Biedl Syndrome", "Rett Syndrome", "22q11 Deletion Syndrome", "Allan-Herndon-Dudley Syndrome", "Kallmann Syndrome", "Rare Bone Disorders", "Noonan Syndrome", "Williams-Beuren Syndrome"]
protocolSection.statusModule.lastUpdatePostDateStruct.date: "2023-09-06"
protocolSection.identificationModule.nctId: "NCT04463316"
protocolSection.identificationModule.officialTitle: "GROWing Up With Rare GENEtic Syndromes \u2026.When Children With Complex Genetic Syndromes Reach Adult Age"
protocolSection.statusModule.overallStatus: "RECRUITING"
protocolSection.designModule.phases: []
protocolSection.statusModule.resultsFirstPostDateStruct.date: ""

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