Myotubular Myopathy
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CLINICAL_TRIALS research · 2026-03-25Clinical Trial Update: Molecular and Genetic Studies of Congenital Myopathies
Boston Children's Hospital is conducting a study on the molecular and genetic basis of several congenital myopathies, and the trial is curre…
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CLINICAL_TRIALS research · 2025-04-09Clinical Trial Update: Myotubular and Centronuclear Myopathy Patient Registry
A patient registry study update for myotubular myopathy and centronuclear myopathy, currently recruiting to collect natural history and outc…