Myotubular Myopathy
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CLINICAL_TRIALS research · 2026-03-25Clinical Trial Update: Molecular and Genetic Studies of Congenital Myopathies
Boston Children's Hospital is conducting a study on the molecular and genetic basis of several congenital myopathies, and the trial is curre…
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CLINICAL_TRIALS research · 2025-04-09Clinical Trial Update: Myotubular and Centronuclear Myopathy Patient Registry
A patient registry study update for myotubular myopathy and centronuclear myopathy, currently recruiting to collect natural history and outc…
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CLINICAL_TRIALS trial_result · 2018-06-07Clinical Trial Update: Prospective, Longitudinal Study of the Natural History and Functional Status of Patients With Myotubular Myopathy (MTM)
A prospective, longitudinal study assessing the natural history and functional status of patients with myotubular myopathy has completed, sp…
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CLINICAL_TRIALS trial_result · 2018-03-07Clinical Trial Update: Myotubular Myopathy Genetic Testing Study
Cure CMD's genetic testing study for myotubular myopathy (NCT01817946) has completed. The update does not indicate a new drug approval or sa…