Marfan Syndrome
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Sign up freeTop drugs studied for this disease
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CLINICAL_TRIALS research · 2026-03-27Clinical Trial Update: Nutritional Ketosis Marfan [NA]
Clinical trial update on nutritional ketosis for Marfan syndrome and aortic dissection; the study is not yet recruiting.
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CLINICAL_TRIALS research · 2026-03-17Clinical Trial Update: Biological Collection for Marfan and Related Syndromes
A biological collection study focused on Marfan syndrome and related disorders, sponsored by University Hospital, Toulouse, is currently rec…
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CLINICAL_TRIALS research · 2026-03-11Clinical Trial Update: Pregnancy in Women With Rare Multisystemic Vascular Diseases: COGRare5 Study
The document announces the COGRare5 study recruiting pregnant women with rare multisystemic vascular diseases. Diseases under study include …
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CLINICAL_TRIALS research · 2026-03-03Clinical Trial Update: Adapted Physical Activity Program (APA) for Effort Rehabilitation of Children and Teenagers With Marfan Syndrome [NA]
The study led by University Hospital, Toulouse, is currently recruiting to evaluate an Adapted Physical Activity Program for effort rehabili…
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CLINICAL_TRIALS trial_result · 2026-02-20Clinical Trial Update: Living With Marfans and Your Aorta: Surgical Outcomes Study
Completed clinical trial assessing surgical outcomes in people with Marfan syndrome affecting the aorta.
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CLINICAL_TRIALS research · 2026-02-19Clinical Trial Update: Clinical and Psychosocial Factors Associated With Physical Activity Level in Adults With Marfan Syndrome
This clinical trial update investigates clinical and psychosocial factors associated with physical activity levels in adults with Marfan syn…
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CLINICAL_TRIALS research · 2026-02-13Clinical Trial Update: Pathogenetic Basis of Aortopathy and Aortic Valve Disease
This clinical trial update describes ongoing research into the pathogenetic basis of aortopathy and aortic valve disease, with focus on thor…
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CLINICAL_TRIALS research · 2026-02-10Clinical Trial Update: Cardiorespiratory and Muscular Rehabilitation of Children and Young Adults With Marfan Syndrome. [NA]
A clinical trial evaluating cardiorespiratory and muscular rehabilitation for individuals with Marfan syndrome has completed.
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CLINICAL_TRIALS trial_result · 2026-01-22Clinical Trial Update: Genotypes and Craniofacial Phenotypes in Orthodontic Patients With Marfan and Loeys-Dietz Syndromes
The study investigating genotypes and craniofacial phenotypes in orthodontic patients with Marfan syndrome or Loeys-Dietz syndrome has compl…
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CLINICAL_TRIALS research · 2025-12-30Clinical Trial Update: National Network for Cardiovascular Genomics: Advancing Cardiovascular Healthcare for Hereditary Diseases in Brazil's Unified Health System Through a Multicenter Registry
A multicenter registry in Brazil's public health system aims to improve care for hereditary cardiovascular diseases by enrolling patients ac…
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CLINICAL_TRIALS research · 2025-10-22Clinical Trial Update: Complex Aortic Aneurysm Repair Using Physician Modified Endografts and Custom Made Devices [NA]
An ongoing clinical trial is recruiting to evaluate repair of complex aortic aneurysms using physician-modified endografts and custom-made d…
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CLINICAL_TRIALS trial_result · 2025-09-12Clinical Trial Update: Clinical Signs and Activity Limitations Associated With Dural Ectasia in Patients With Marfan Disease
This completed clinical trial investigated the clinical signs and activity limitations associated with dural ectasia in patients with Marfan…
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CLINICAL_TRIALS research · 2025-09-12Clinical Trial Update: Multicentre Longitudinal Study of Bone Mineralisation Characteristics in Marfan Syndrome and Ehlers-Danlos Syndrome
A multicentre longitudinal study examining bone mineralisation characteristics in Marfan syndrome and Ehlers-Danlos syndrome; the trial is n…
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CLINICAL_TRIALS research · 2025-09-10Clinical Trial Update: Analysis of Muscular Properties in Patients With MFS and EDS
A clinical trial update analyzing muscular properties in patients with Marfan syndrome and Ehlers-Danlos syndrome to better understand muscu…
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CLINICAL_TRIALS research · 2025-09-10Clinical Trial Update: APPLICATION OF THERAPEUTIC PHOTOGRAPHY AND EXPRESSIVE WRITING IN THE MANAGEMENT OF PATIENTS WITH MARFAN SYNDROME [NA]
A non-pharmacologic study evaluating therapeutic photography and expressive writing as management strategies for Marfan syndrome; the trial …
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CLINICAL_TRIALS research · 2025-09-10Clinical Trial Update: Fibroblasts and Thoracic Aortic Aneurysms: in Vitro Characterization in With Marfan Syndrome and Genetic Aortic Diseases
Clinical trial update describing in vitro characterization of fibroblasts related to Marfan syndrome and genetic aortic diseases. It notes T…
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CLINICAL_TRIALS research · 2025-09-10Clinical Trial Update: Marfan Syndrome and Quality of Life of Pediatric Patients
This clinical trial update notes a study investigating Marfan syndrome and quality of life in pediatric patients, with the trial currently A…
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CLINICAL_TRIALS trial_result · 2025-08-29Clinical Trial Update: Measurement of Heart-carotid Pulse Wave Velocity (hcPWV) by Laser Doppler Vibrometry (LDV) [NA]
A completed clinical trial evaluating heart-carotid pulse wave velocity measurement using Laser Doppler Vibrometry in patients with hyperten…
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CLINICAL_TRIALS trial_result · 2025-07-03Clinical Trial Update: Towards Optimal Treatment of Marfan Syndrome
A completed clinical trial titled 'Towards Optimal Treatment of Marfan Syndrome' conducted by AMC-UvA evaluated approaches for optimizing tr…
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CLINICAL_TRIALS research · 2025-05-13Clinical Trial Update: Transcriptomic Study of Adult Population With Marfan Syndrome
Clinical trial update for a transcriptomic study in adults with Marfan syndrome, currently recruiting. Sponsor: IRCCS Policlinico S. Donato.
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CLINICAL_TRIALS research · 2025-01-13Clinical Trial Update: Fatigue, Depressive Disorders and Insomnia in Adult Patients with Marfan Syndrome and Ehlers-Danlos Syndrome: Survey
This completed clinical trial survey studied fatigue, depressive disorders, and insomnia in adults with Marfan syndrome and Ehlers-Danlos sy…
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CLINICAL_TRIALS research · 2025-01-13Clinical Trial Update: Marfan Syndrome (MFS) and Facial Dysmorphism: Non-invasive 3D Assessment
A clinical trial is evaluating a non-invasive 3D facial assessment for Marfan syndrome to characterize facial dysmorphism. The study is curr…
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CLINICAL_TRIALS trial_result · 2024-10-26Clinical Trial Update: Single-Session "Empowered Relief" Class for Marfan Syndrome and Related Conditions [NA]
Stanford's clinical trial update reports the completion of a single-session 'Empowered Relief' class for Marfan syndrome and related conditi…
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CLINICAL_TRIALS trial_result · 2024-08-23Clinical Trial Update: Mortality and Morbidity Outcomes in Marfans
A clinical trial evaluating mortality and morbidity in Marfan syndrome has completed, providing updated outcomes from the study.
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CLINICAL_TRIALS research · 2024-07-15Clinical Trial Update: Proximal Aortopathy in Scotland - Epidemiology and Surgical Outcomes
This clinical trial update describes a Scotland-based study on proximal aortopathy, examining its epidemiology and surgical outcomes across …