Loeys-dietz Syndrome
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CLINICAL_TRIALS research · 2026-04-01Clinical Trial Update: Natural History and Genetics of Food Allergy and Related Conditions
Ongoing NIAID study aims to characterize the natural history and genetics of food allergy and related conditions, including Loeys-Dietz synd…
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CLINICAL_TRIALS research · 2026-02-13Clinical Trial Update: Pathogenetic Basis of Aortopathy and Aortic Valve Disease
This clinical trial update describes ongoing research into the pathogenetic basis of aortopathy and aortic valve disease, with focus on thor…
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CLINICAL_TRIALS trial_result · 2026-01-22Clinical Trial Update: Genotypes and Craniofacial Phenotypes in Orthodontic Patients With Marfan and Loeys-Dietz Syndromes
The study investigating genotypes and craniofacial phenotypes in orthodontic patients with Marfan syndrome or Loeys-Dietz syndrome has compl…
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CLINICAL_TRIALS research · 2025-12-30Clinical Trial Update: National Network for Cardiovascular Genomics: Advancing Cardiovascular Healthcare for Hereditary Diseases in Brazil's Unified Health System Through a Multicenter Registry
A multicenter registry in Brazil's public health system aims to improve care for hereditary cardiovascular diseases by enrolling patients ac…
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CLINICAL_TRIALS research · 2025-10-22Clinical Trial Update: Complex Aortic Aneurysm Repair Using Physician Modified Endografts and Custom Made Devices [NA]
An ongoing clinical trial is recruiting to evaluate repair of complex aortic aneurysms using physician-modified endografts and custom-made d…
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CLINICAL_TRIALS trial_result · 2024-10-26Clinical Trial Update: Single-Session "Empowered Relief" Class for Marfan Syndrome and Related Conditions [NA]
Stanford's clinical trial update reports the completion of a single-session 'Empowered Relief' class for Marfan syndrome and related conditi…
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CLINICAL_TRIALS research · 2024-07-15Clinical Trial Update: Proximal Aortopathy in Scotland - Epidemiology and Surgical Outcomes
This clinical trial update describes a Scotland-based study on proximal aortopathy, examining its epidemiology and surgical outcomes across …
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CLINICAL_TRIALS research · 2017-03-15Clinical Trial Update: Micro RNAs as a Marker of Aortic Aneurysm in Hereditary Aortopathy Syndromes
A completed clinical trial evaluated microRNAs as biomarkers for aortic aneurysm in hereditary aortopathy syndromes such as Marfan syndrome …
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CLINICAL_TRIALS trial_result · 2016-12-20Clinical Trial Update: National Registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions
This clinical trial registry update notes the completion of an NHLBI-sponsored study on genetically triggered thoracic aortic aneurysms and …