Hereditary Hemorrhagic Telangiectasia
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CLINICAL_TRIALS research · 2026-04-22Clinical Trial Update: CHORUS - Comprehensive HHT Outcomes Registry of the United States (Formerly OUR HHT Registry)
The CHORUS registry (NCT04150822) is an ongoing US outcomes registry for hereditary hemorrhagic telangiectasia (formerly OUR HHT), sponsored…
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CLINICAL_TRIALS research · 2026-04-03Clinical Trial Update: A Study to Evaluate ALN-6400 in Healthy Volunteers and Patients With Hereditary Hemorrhagic Telangiectasia (HHT) [Phase 1, Phase 2]
A clinical trial evaluating ALN-6400 in healthy volunteers and patients with Hereditary Hemorrhagic Telangiectasia is currently recruiting i…
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CLINICAL_TRIALS research · 2026-03-27Clinical Trial Update: Bevacizumab In Hereditary Hemorrhagic Telangiectasia [Phase 2]
A Phase 2 clinical trial of bevacizumab for hereditary hemorrhagic telangiectasia is currently active but not recruiting.
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CLINICAL_TRIALS research · 2026-03-17Clinical Trial Update: Assess Safety and Efficacy of VAD044 in HHT Patients [Phase 1, Phase 2]
Ongoing Phase 1/2 study evaluating the safety and efficacy of VAD044 for hereditary hemorrhagic telangiectasia (HHT); the trial is currently…
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CLINICAL_TRIALS research · 2026-03-16Clinical Trial Update: Quality of Life in Pediatric Participants With HHT
A clinical trial update describes a planned study to assess quality of life in pediatric participants with hereditary hemorrhagic telangiect…
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CLINICAL_TRIALS research · 2026-03-11Clinical Trial Update: Pregnancy in Women With Rare Multisystemic Vascular Diseases: COGRare5 Study
The document announces the COGRare5 study recruiting pregnant women with rare multisystemic vascular diseases. Diseases under study include …
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CLINICAL_TRIALS research · 2026-03-11Clinical Trial Update: Efficacy of Nintedanib for Treatment of Epistaxis in Hereditary Hemorrhagic Telangiectasia (HHT) Patients [Phase 2]
A Phase 2 clinical trial is evaluating nintedanib for reducing epistaxis in patients with hereditary hemorrhagic telangiectasia and is curre…
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CLINICAL_TRIALS research · 2026-02-17Clinical Trial Update: Non-Invasive Detection of Pulmonary Right-to-Left Shunts Using the SONAS Ultrasound Device [NA]
A recruiting clinical trial evaluating a non-invasive SONAS ultrasound device to detect pulmonary right-to-left shunts in patients with here…
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CLINICAL_TRIALS research · 2025-10-03Clinical Trial Update: Immunological Effects of Iron Supplementation in HHT Disease [NA]
A clinical trial in Lyon is investigating the immunological effects of iron supplementation in patients with hereditary hemorrhagic telangie…
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CLINICAL_TRIALS research · 2025-09-23Clinical Trial Update: Pomalidomide for the Treatment of Bleeding in Hereditary Hemorrhagic Telangiectasia Longitudinal Assessment Study
A clinical trial update indicating pomalidomide is being studied for bleeding in hereditary hemorrhagic telangiectasia in a longitudinal ass…
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CLINICAL_TRIALS research · 2025-09-03Clinical Trial Update: Genotype Expression and Phenotype of Endothelial Cells, Carrying an ACVRL1, ENG or SMAD4 Mutation, in Response to BMP9 for the Identification of New Therapeutic Targets in Hereditary Haemorrhagic Telangiectasia [NA]
Clinical trial investigating how endothelial cells with ACVRL1, ENG, or SMAD4 mutations respond to BMP9 to identify new therapeutic targets …
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CLINICAL_TRIALS research · 2025-06-13Clinical Trial Update: Comprehensive HHT Outcomes Registry of the United States (CHORUS)
CHORUS is a comprehensive United States outcomes registry for hereditary hemorrhagic telangiectasia (HHT) and related vascular malformations…
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CLINICAL_TRIALS research · 2025-05-22Clinical Trial Update: Institutional Registry of Haemorrhagic Hereditary Telangiectasia
An update on a recruiting registry for hereditary hemorrhagic telangiectasia, sponsored by Hospital Italiano de Buenos Aires.
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CLINICAL_TRIALS research · 2025-04-09Clinical Trial Update: Prospective Study of Antiplatelet and Anticoagulation Therapy in Hereditary Haemorrhagic Telangiectasia [NA]
A prospective study evaluating antiplatelet and anticoagulation therapy for hereditary hemorrhagic telangiectasia is currently recruiting, s…
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CLINICAL_TRIALS research · 2025-03-30Clinical Trial Update: Quality of Life in Patients With Hemorrhagic Telangiectasia
This clinical trial update describes a study assessing quality of life in patients with hereditary hemorrhagic telangiectasia. The trial is …
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CLINICAL_TRIALS research · 2025-03-30Clinical Trial Update: Hereditary Hemorrhagic Telangiectasia and Neurovascular Manifestations, in the Danish HHT Database
Clinical trial update from Odense University Hospital describes an active-not-recruiting study in Denmark examining hereditary hemorrhagic t…
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CLINICAL_TRIALS research · 2025-03-17Clinical Trial Update: Genotype-phenotype Association in Hereditary Hemorrhagic Telangiectasia
Completed clinical trial investigating genotype-phenotype associations in hereditary hemorrhagic telangiectasia. The study update may inform…
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CLINICAL_TRIALS research · 2024-12-10Clinical Trial Update: Tourniquet-Test in HHT [NA]
Clinical trial update indicates a tourniquet-test study for hereditary hemorrhagic telangiectasia is currently active but not recruiting.
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CLINICAL_TRIALS research · 2024-12-10Clinical Trial Update: Evaluation of Video-assisted Instructions of Nasal Self-packing in Patients with HHT
A clinical trial evaluates video-assisted instructions for nasal self-packing in patients with hereditary hemorrhagic telangiectasia. The st…
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CLINICAL_TRIALS research · 2024-12-06Clinical Trial Update: Influence of Hypoxic Induced Factors in Patients With Hereditary Hemorrhagic Telangiectasia
A clinical trial update studying how hypoxia-related factors affect patients with hereditary hemorrhagic telangiectasia; the study is curren…
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CLINICAL_TRIALS research · 2024-03-29Clinical Trial Update: Diet and Hereditary Haemorrhagic Telangiectasia [NA]
A completed clinical trial evaluating the impact of diet on Hereditary Hemorrhagic Telangiectasia (HHT) with results posted.
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CLINICAL_TRIALS research · 2020-05-28Clinical Trial Update: Prospective Pilot Study of Floseal for the Treatment of Anterior Epistaxis in Patients With (HHT) [NA]
A completed prospective pilot study evaluating the use of Floseal for anterior epistaxis in patients with hereditary hemorrhagic telangiecta…
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CLINICAL_TRIALS research · 2016-11-15Clinical Trial Update: Treatment of Nasal Staphylococcus Aureus Colonization in Patients With HHT [Phase 3]
Phase 3 clinical trial evaluating treatment of nasal Staphylococcus aureus colonization in patients with hereditary hemorrhagic telangiectas…
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CLINICAL_TRIALS research · 2015-06-01Clinical Trial Update: Cardiopulmonary Exercise Testing to Evaluate Pulmonary AVMs With and Without Airflow Obstruction [NA]
This clinical trial update describes evaluating pulmonary arteriovenous malformations with and without airflow obstruction using cardiopulmo…