Ehlers-danlos Syndrome
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Sign up freeTop drugs studied for this disease
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CLINICAL_TRIALS research · 2026-03-11Clinical Trial Update: STABLE Pilates for Hypermobility [NA]
Update on a planned clinical trial evaluating STABLE Pilates for individuals with Ehlers-Danlos syndrome, including hypermobile forms; recru…
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CLINICAL_TRIALS research · 2026-03-02Clinical Trial Update: The Ultrasound-Guided Dextrose Prolotherapy in Ehlers-Danlos Syndrome Patients [Phase 3]
A Phase 3 clinical trial evaluating ultrasound-guided dextrose prolotherapy for Ehlers-Danlos syndrome is listed as not yet recruiting, with…
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CLINICAL_TRIALS trial_result · 2026-02-27Clinical Trial Update: Hypermobile Ehlers-Danlos Syndrome - Transcutaneous Auricular Neuromodulation [NA]
A clinical trial evaluating transcutaneous auricular neuromodulation for Hypermobile Ehlers-Danlos syndrome has completed.
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CLINICAL_TRIALS research · 2026-02-02Clinical Trial Update: Fibroblast Line Evaluation for COL5A eXpression and Thoracic Aortic Aneurysms: in Vitro Characterization of Cutaneous Fibroblasts in Adult Patients
This trial update describes an in vitro characterization of cutaneous fibroblasts from adults with COL5A gene mutations to study COL5A expre…
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CLINICAL_TRIALS trial_result · 2026-01-27Clinical Trial Update: Genetics of Ehlers-Danlos Syndrome
A Boston University clinical trial on the genetics of Ehlers-Danlos syndrome has completed.
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CLINICAL_TRIALS research · 2025-11-20Clinical Trial Update: Registry of Ehlers-Danlos Syndrome
This entry is a clinical trial registry for Ehlers-Danlos syndrome that is currently recruiting.
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CLINICAL_TRIALS research · 2025-10-22Clinical Trial Update: Complex Aortic Aneurysm Repair Using Physician Modified Endografts and Custom Made Devices [NA]
An ongoing clinical trial is recruiting to evaluate repair of complex aortic aneurysms using physician-modified endografts and custom-made d…
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CLINICAL_TRIALS research · 2025-10-14Clinical Trial Update: Local Anesthetic Response in Ehlers-Danlos Syndrome (EDS) and Healthy Volunteers
A Vanderbilt University Medical Center study is examining local anesthetic response in people with Ehlers-Danlos syndrome and in healthy vol…
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CLINICAL_TRIALS research · 2025-09-12Clinical Trial Update: Multicentre Longitudinal Study of Bone Mineralisation Characteristics in Marfan Syndrome and Ehlers-Danlos Syndrome
A multicentre longitudinal study examining bone mineralisation characteristics in Marfan syndrome and Ehlers-Danlos syndrome; the trial is n…
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CLINICAL_TRIALS research · 2025-09-10Clinical Trial Update: Analysis of Muscular Properties in Patients With MFS and EDS
A clinical trial update analyzing muscular properties in patients with Marfan syndrome and Ehlers-Danlos syndrome to better understand muscu…
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CLINICAL_TRIALS research · 2025-09-03Clinical Trial Update: Impact of Ehlers-Danlos Syndrome on Gynaecological Health
A clinical trial evaluating the impact of Ehlers-Danlos Syndrome on gynecological health. The study is not yet recruiting.
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CLINICAL_TRIALS research · 2025-07-24Clinical Trial Update: Group Coaching Study for Life Goals [NA]
An ongoing Thomas Jefferson University clinical trial is evaluating a group coaching program to support life goals; enrollment is by invitat…
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CLINICAL_TRIALS research · 2025-07-20Clinical Trial Update: Functional Instability in Patients Suffering From Collagen Disease and Joint Hypermobility
A recruiting clinical trial sponsored by Istituto Ortopedico Rizzoli studies functional instability in patients with collagen-related disord…
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CLINICAL_TRIALS research · 2025-01-13Clinical Trial Update: Fatigue, Depressive Disorders and Insomnia in Adult Patients with Marfan Syndrome and Ehlers-Danlos Syndrome: Survey
This completed clinical trial survey studied fatigue, depressive disorders, and insomnia in adults with Marfan syndrome and Ehlers-Danlos sy…
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CLINICAL_TRIALS research · 2025-01-06Clinical Trial Update: Two Point Discrimination [EARLY_Phase 1]
A Phase 1 clinical trial update for 'Two Point Discrimination' sponsored by Children's Hospital Medical Center, Cincinnati, investigating pa…
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CLINICAL_TRIALS research · 2024-12-18Clinical Trial Update: Local Anesthetic Response in Ehlers-Danlos Syndrome (EDS) and Healthy Volunteers [Phase 4]
Phase 4 study evaluating local anesthetic response in people with Ehlers-Danlos syndrome and in healthy volunteers. The trial is currently a…
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CLINICAL_TRIALS research · 2024-07-15Clinical Trial Update: Proximal Aortopathy in Scotland - Epidemiology and Surgical Outcomes
This clinical trial update describes a Scotland-based study on proximal aortopathy, examining its epidemiology and surgical outcomes across …
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CLINICAL_TRIALS research · 2024-06-24Clinical Trial Update: Evaluation of the Effects of Cross Linking on the Biomechanical Characteristics of Skin Samples From Patients With Classic or Hypermobile Ehlers-Danlos Syndrome [NA]
Clinical trial update evaluating the effects of cross-linking on biomechanical properties of skin from patients with Classic or Hypermobile …
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CLINICAL_TRIALS trial_result · 2022-03-31Clinical Trial Update: Impact of Oxygen Therapy on Fatigue in Patients With Hypermobile-type Ehlers-Danlos Syndrome [Phase 4]
Phase 4 clinical trial update investigating the effect of oxygen therapy on fatigue in patients with Ehlers-Danlos Syndrome.
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CLINICAL_TRIALS trial_result · 2021-10-07Clinical Trial Update: Assessment of Small Fiber Neuropathy in Rare Diseases Using Sudoscan [NA]
A completed clinical trial assessing small fiber neuropathy in Fabry disease and related conditions using Sudoscan; results posted in 2021.
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CLINICAL_TRIALS trial_result · 2021-04-14Clinical Trial Update: Standing Cognition and Co-morbidities of POTS Evaluation [NA]
A completed clinical trial evaluating standing cognition and co-morbidities in Postural Tachycardia Syndrome and Ehlers-Danlos Syndrome; res…
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CLINICAL_TRIALS research · 2018-07-02Clinical Trial Update: Gait Retraining in Patients With Joint Hypermobility Syndrome/Hypermobile Ehlers Danlos Syndrome [NA]
An update on a gait retraining study for patients with Joint Hypermobility Syndrome and Hypermobile Ehlers-Danlos Syndrome; the trial status…
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CLINICAL_TRIALS research · 2018-04-05Clinical Trial Update: Studies of Heritable Disorders of Connective Tissue
A Clinical Trial Update from the National Institute on Aging reports completed studies on heritable connective tissue disorders, including E…
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CLINICAL_TRIALS trial_result · 2017-05-15Clinical Trial Update: Obstructive Sleep Apnoea in Children and Adolescents With Ehlers-Danlos Syndrome
A completed clinical trial investigating obstructive sleep apnea in children and adolescents with Ehlers-Danlos syndrome.
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CLINICAL_TRIALS trial_result · 2016-12-20Clinical Trial Update: National Registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions
This clinical trial registry update notes the completion of an NHLBI-sponsored study on genetically triggered thoracic aortic aneurysms and …