CLINICAL_TRIALS ClinicalTrials.gov record update

An Observational Study to Describe the Long-term Safety and Effectiveness of Namuscla in the Symptomatic Management of Myotonia in Adult Patients With Non-dystrophic Myotonic Disorders

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Record identity and dates

Source: ClinicalTrials.gov
Source record ID: NCT04616807
Title field or adapter rule: protocolSection.identificationModule.officialTitle
Ingested At: 2026-04-25T22:27:32.890716+00:00
Published At: 2025-07-25T00:00:00+00:00
Record Updated At: 2025-07-25
Timestamp Basis: source retrieval time was not retained by the feed adapter
Date limitation: source retrieval time was not retained by the feed adapter

protocolSection.conditionsModule.conditions: ["Myotonic Dystrophy"]
protocolSection.statusModule.lastUpdatePostDateStruct.date: "2025-07-25"
protocolSection.identificationModule.nctId: "NCT04616807"
protocolSection.identificationModule.officialTitle: "An Observational Study to Describe the Long-term Safety and Effectiveness of Namuscla in the Symptomatic Management of Myotonia in Adult Patients With Non-dystrophic Myotonic Disorders"
protocolSection.statusModule.overallStatus: "ACTIVE_NOT_RECRUITING"
protocolSection.designModule.phases: []
protocolSection.statusModule.resultsFirstPostDateStruct.date: ""

Intervention details are not present in the imported fields for this record. No drug-condition relationship is inferred from co-listing.

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