CLINICAL_TRIALS ClinicalTrials.gov record update

Natural History and Long Term Clinical Assessments of All Forms of Neuronal Ceroid Lipofuscinoses - Capturing Key Symptoms and Disease Progression as Part of the Independent, International NCL DEM-CHILD Patient Database

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Record identity and dates

Source: ClinicalTrials.gov
Source record ID: NCT04613089
Title field or adapter rule: protocolSection.identificationModule.officialTitle
Ingested At: 2026-04-28T10:38:25.392185+00:00
Published At: 2021-10-29T00:00:00+00:00
Record Updated At: 2021-10-29
Timestamp Basis: source retrieval time was not retained by the feed adapter
Date limitation: source retrieval time was not retained by the feed adapter

protocolSection.conditionsModule.conditions: ["Neuronal Ceroid Lipofuscinosis", "Batten Disease", "CLN1 Disease", "CLN2 Disease", "CLN3 Disease", "CLN4 Disease", "CLN5 Disease", "CLN6 Disease", "CLN7 Disease", "CLN8 Disease", "CLN10 Disease", "CLN11 Disease", "CLN12 Disease", "CLN13 Disease", "CLN14 Disease"]
protocolSection.statusModule.lastUpdatePostDateStruct.date: "2021-10-29"
protocolSection.identificationModule.nctId: "NCT04613089"
protocolSection.identificationModule.officialTitle: "Natural History and Long Term Clinical Assessments of All Forms of Neuronal Ceroid Lipofuscinoses - Capturing Key Symptoms and Disease Progression as Part of the Independent, International NCL DEM-CHILD Patient Database"
protocolSection.statusModule.overallStatus: "RECRUITING"
protocolSection.designModule.phases: []
protocolSection.statusModule.resultsFirstPostDateStruct.date: ""

Intervention details are not present in the imported fields for this record. No drug-condition relationship is inferred from co-listing.

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