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CLINICAL_TRIALS ClinicalTrials.gov record update

The Myelin Disorders Biorepository Project and Global Leukodystrophy Initiative Clinical Trials Network

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Record identity and dates

Source
ClinicalTrials.gov
Source record ID
NCT03047369
Title field or adapter rule
protocolSection.identificationModule.officialTitle
Ingested At
2026-04-25T22:29:01.741976+00:00
Published At
2025-10-23T00:00:00+00:00
Record Updated At
2025-10-23
Timestamp Basis
source retrieval time was not retained by the feed adapter
Date limitation
source retrieval time was not retained by the feed adapter

Fields recorded by this source

protocolSection.conditionsModule.conditions
["Leukodystrophy", "White Matter Disease", "Leukoencephalopathies", "4H Syndrome", "Adrenoleukodystrophy", "AMN", "ALD", "ALD Gene Mutation", "ALD (Adrenoleukodystrophy)", "X-linked Adrenoleukodystrophy", "X-ALD", "Adrenomyeloneuropathy", "Aicardi Goutieres Syndrome", "AGS", "Alexander Disease", "Alexanders Leukodystrophy", "AxD", "ADLD", "Canavan Disease", "CTX", "Cerebrotendinous Xanthomatoses", "Krabbe Disease", "GALC Deficiency", "Globoid Leukodystrophy", "TUBB4A-Related Leukodystrophy", "H-ABC - Hypomyelination, Atrophy of Basal Ganglia and Cerebellum", "HBSL", "HBSL - Hypomyelination, Brain Stem, Spinal Cord, Leg Spasticity", "LBSL", "Leukoencephalopathy With Brain Stem and Spinal Cord Involvement and High Lactate Syndrome (Disorder)", "Leukoencephalopathy With Brainstem and Spinal Cord Involvement and Lactate Elevation", "ALSP", "CSF1R Gene Mutation", "HCC - Hypomyelination and Congenital Cataract", "MLC1", "Megalencephalic Leukoencephalopathy With Subcortical Cysts", "MLD", "Metachromatic Leukodystrophy", "PMD", "Pelizaeus-Merzbacher Disease", "PLP1 Null Syndrome", "PLP1 Gene Duplication \u0026#X7C; Blood or Tissue \u0026#X7C; Mutations", "Pelizaeus Merzbacher Like Disease", "Peroxisomal Biogenesis Disorder", "Zellweger Syndrome", "Refsum Disease", "Salla Disease", "Sialic Storage Disease", "Sj\u00f6gren", "Sjogren-Larsson Syndrome", "Van Der Knapp Disease", "Vanishing White Matter Disease", "Charcot-Marie-Tooth", "CMT", "Mct8 (Slc16A2)-Specific Thyroid Hormone Cell Transporter Deficiency", "Allan-Herndon-Dudley Syndrome", "Cadasil", "Cockayne Syndrome", "Multiple Sulfatase Deficiency", "Gangliosidoses", "GM2 Gangliosidosis", "BPAN", "Labrune Syndrome", "LCC", "Mucopolysaccharidoses", "TBCK-Related Intellectual Disability Syndrome"]
protocolSection.statusModule.lastUpdatePostDateStruct.date
"2025-10-23"
protocolSection.identificationModule.nctId
"NCT03047369"
protocolSection.identificationModule.officialTitle
"The Myelin Disorders Biorepository Project and Global Leukodystrophy Initiative Clinical Trials Network"
protocolSection.statusModule.overallStatus
"RECRUITING"
protocolSection.designModule.phases
[]
protocolSection.statusModule.resultsFirstPostDateStruct.date
""

Study condition terms

  • Leukodystrophy (protocolSection.conditionsModule.conditions)
  • White Matter Disease (protocolSection.conditionsModule.conditions)
  • Leukoencephalopathies (protocolSection.conditionsModule.conditions)
  • 4H Syndrome (protocolSection.conditionsModule.conditions)
  • Adrenoleukodystrophy (protocolSection.conditionsModule.conditions)
  • AMN (protocolSection.conditionsModule.conditions)
  • ALD (protocolSection.conditionsModule.conditions)
  • ALD Gene Mutation (protocolSection.conditionsModule.conditions)
  • ALD (Adrenoleukodystrophy) (protocolSection.conditionsModule.conditions)
  • X-linked Adrenoleukodystrophy (protocolSection.conditionsModule.conditions)
  • X-ALD (protocolSection.conditionsModule.conditions)
  • Adrenomyeloneuropathy (protocolSection.conditionsModule.conditions)
  • Aicardi Goutieres Syndrome (protocolSection.conditionsModule.conditions)
  • AGS (protocolSection.conditionsModule.conditions)
  • Alexander Disease (protocolSection.conditionsModule.conditions)
  • Alexanders Leukodystrophy (protocolSection.conditionsModule.conditions)
  • AxD (protocolSection.conditionsModule.conditions)
  • ADLD (protocolSection.conditionsModule.conditions)
  • Canavan Disease (protocolSection.conditionsModule.conditions)
  • CTX (protocolSection.conditionsModule.conditions)
  • Cerebrotendinous Xanthomatoses (protocolSection.conditionsModule.conditions)
  • Krabbe Disease (protocolSection.conditionsModule.conditions)
  • GALC Deficiency (protocolSection.conditionsModule.conditions)
  • Globoid Leukodystrophy (protocolSection.conditionsModule.conditions)
  • TUBB4A-Related Leukodystrophy (protocolSection.conditionsModule.conditions)
  • H-ABC - Hypomyelination, Atrophy of Basal Ganglia and Cerebellum (protocolSection.conditionsModule.conditions)
  • HBSL (protocolSection.conditionsModule.conditions)
  • HBSL - Hypomyelination, Brain Stem, Spinal Cord, Leg Spasticity (protocolSection.conditionsModule.conditions)
  • LBSL (protocolSection.conditionsModule.conditions)
  • Leukoencephalopathy With Brain Stem and Spinal Cord Involvement and High Lactate Syndrome (Disorder) (protocolSection.conditionsModule.conditions)
  • Leukoencephalopathy With Brainstem and Spinal Cord Involvement and Lactate Elevation (protocolSection.conditionsModule.conditions)
  • ALSP (protocolSection.conditionsModule.conditions)
  • CSF1R Gene Mutation (protocolSection.conditionsModule.conditions)
  • HCC - Hypomyelination and Congenital Cataract (protocolSection.conditionsModule.conditions)
  • MLC1 (protocolSection.conditionsModule.conditions)
  • Megalencephalic Leukoencephalopathy With Subcortical Cysts (protocolSection.conditionsModule.conditions)
  • MLD (protocolSection.conditionsModule.conditions)
  • Metachromatic Leukodystrophy (protocolSection.conditionsModule.conditions)
  • PMD (protocolSection.conditionsModule.conditions)
  • Pelizaeus-Merzbacher Disease (protocolSection.conditionsModule.conditions)
  • PLP1 Null Syndrome (protocolSection.conditionsModule.conditions)
  • PLP1 Gene Duplication | Blood or Tissue | Mutations (protocolSection.conditionsModule.conditions)
  • Pelizaeus Merzbacher Like Disease (protocolSection.conditionsModule.conditions)
  • Peroxisomal Biogenesis Disorder (protocolSection.conditionsModule.conditions)
  • Zellweger Syndrome (protocolSection.conditionsModule.conditions)
  • Refsum Disease (protocolSection.conditionsModule.conditions)
  • Salla Disease (protocolSection.conditionsModule.conditions)
  • Sialic Storage Disease (protocolSection.conditionsModule.conditions)
  • Sjögren (protocolSection.conditionsModule.conditions)
  • Sjogren-Larsson Syndrome (protocolSection.conditionsModule.conditions)
  • Van Der Knapp Disease (protocolSection.conditionsModule.conditions)
  • Vanishing White Matter Disease (protocolSection.conditionsModule.conditions)
  • Charcot-Marie-Tooth (protocolSection.conditionsModule.conditions)
  • CMT (protocolSection.conditionsModule.conditions)
  • Mct8 (Slc16A2)-Specific Thyroid Hormone Cell Transporter Deficiency (protocolSection.conditionsModule.conditions)
  • Allan-Herndon-Dudley Syndrome (protocolSection.conditionsModule.conditions)
  • Cadasil (protocolSection.conditionsModule.conditions)
  • Cockayne Syndrome (protocolSection.conditionsModule.conditions)
  • Multiple Sulfatase Deficiency (protocolSection.conditionsModule.conditions)
  • Gangliosidoses (protocolSection.conditionsModule.conditions)
  • GM2 Gangliosidosis (protocolSection.conditionsModule.conditions)
  • BPAN (protocolSection.conditionsModule.conditions)
  • Labrune Syndrome (protocolSection.conditionsModule.conditions)
  • LCC (protocolSection.conditionsModule.conditions)
  • Mucopolysaccharidoses (protocolSection.conditionsModule.conditions)
  • TBCK-Related Intellectual Disability Syndrome (protocolSection.conditionsModule.conditions)

Intervention details are not present in the imported fields for this record. No drug-condition relationship is inferred from co-listing.

This index keeps the source fields it imported; it may not contain the complete original record. Verify wording and context in the linked source.