CLINICAL_TRIALS ClinicalTrials.gov record update

National Cohort for Evaluation of the Burden of Rare Skin Diseases

This page presents selected fields from the linked source record. It does not add a medical interpretation.

Record identity and dates

Source: ClinicalTrials.gov
Source record ID: NCT05954416
Title field or adapter rule: protocolSection.identificationModule.officialTitle
Ingested At: 2026-04-25T22:28:26.708744+00:00
Published At: 2026-02-12T00:00:00+00:00
Record Updated At: 2026-02-12
Timestamp Basis: source retrieval time was not retained by the feed adapter
Date limitation: source retrieval time was not retained by the feed adapter

protocolSection.conditionsModule.conditions: ["Inherited Epidermolysis Bullosa", "Ichthyosis", "Ectodermal Dysplasia", "Incontinentia Pigmenti", "Neurofibromatosis Type 1", "Albinism", "Pemphigus", "Mucous Membrane Pemphigoid", "Palmoplantar Keratoderma"]
protocolSection.statusModule.lastUpdatePostDateStruct.date: "2026-02-12"
protocolSection.identificationModule.nctId: "NCT05954416"
protocolSection.identificationModule.officialTitle: "National Cohort for Evaluation of the Burden of Rare Skin Diseases"
protocolSection.statusModule.overallStatus: "RECRUITING"
protocolSection.designModule.phases: []
protocolSection.statusModule.resultsFirstPostDateStruct.date: ""

Intervention details are not present in the imported fields for this record. No drug-condition relationship is inferred from co-listing.

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