CLINICAL_TRIALS ClinicalTrials.gov record update

TIRCON International NBIA (Neurodegeneration Associated With Brain Iron Accumulation) Patient Registry and Natural History Study

This page presents selected fields from the linked source record. It does not add a medical interpretation.

Record identity and dates

Source: ClinicalTrials.gov
Source record ID: NCT05522374
Title field or adapter rule: protocolSection.identificationModule.officialTitle
Ingested At: 2026-04-25T22:27:43.569465+00:00
Published At: 2025-06-05T00:00:00+00:00
Record Updated At: 2025-06-05
Timestamp Basis: source retrieval time was not retained by the feed adapter
Date limitation: source retrieval time was not retained by the feed adapter

protocolSection.conditionsModule.conditions: ["Neurodegeneration With Brain Iron Accumulation (NBIA)", "Pantothenate Kinase-associated Neurodegeneration (PKAN)", "Beta-Propeller Protein-Associated Neurodegeneration (BPAN)", "Mitochondrial Membrane Protein Associated Neurodegeneration (MPAN)", "Fatty Acid Hydroxylase-associated Neurodegeneration (FAHN)", "Kufor Rakeb Syndrome", "Neuroferritinopathy", "Aceruloplasminemia", "Woodhouse Sakati Syndrome", "COASY Protein-associated Neurodegeneration (CoPAN)", "PLA2G6-Associated Neurodegeneration (PLAN)"]
protocolSection.statusModule.lastUpdatePostDateStruct.date: "2025-06-05"
protocolSection.identificationModule.nctId: "NCT05522374"
protocolSection.identificationModule.officialTitle: "TIRCON International NBIA (Neurodegeneration Associated With Brain Iron Accumulation) Patient Registry and Natural History Study"
protocolSection.statusModule.overallStatus: "RECRUITING"
protocolSection.designModule.phases: []
protocolSection.statusModule.resultsFirstPostDateStruct.date: ""

Intervention details are not present in the imported fields for this record. No drug-condition relationship is inferred from co-listing.

This index keeps the source fields it imported; it may not contain the complete original record. Verify wording and context in the linked source.