Records containing: Sickle Cell Disease
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CLINICAL_TRIALS study record update · 2024-07-16A LOW-INTERVENTIONAL LONGITUDINAL STUDY OF AN ELECTRONIC SICKLE CELL DISEASE PATIENT REPORTED OUTCOMES IN ADULT PARTICIPANTS AGED ≥18 YEARS OF AGE ON AND OFF HYDROXYUREA
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CLINICAL_TRIALS study record update · 2024-07-16Sickle Cell Disease Patient Reported Outcomes in Adult Participants Aged ≥18 Years of Age On and Off Hydroxyurea
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CLINICAL_TRIALS study record update · 2024-07-16Nitrous Oxide for Analgesia in Sickle Cell Vaso-occlusive Crisis
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CLINICAL_TRIALS study record update · 2024-07-12Haploidentical Donor T-cell Replete Allogeneic Hematopoietic Cell Transplant Following Reducing Intensity Conditioning for Patients With Selected High Risk Non-Malignant Disease
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CLINICAL_TRIALS study record update · 2024-07-11Lung Ultrasound in Pediatric Acute Chest Syndrome
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CLINICAL_TRIALS study record update · 2024-06-27Using Patient-Centered Guidelines in a Technology Platform to Improve Health Care in Adults With Sickle Cell Disease
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CLINICAL_TRIALS study record update · 2024-06-26Hydroxyurea Adherence for Personal Best in Sickle Cell Disease (HABIT): Efficacy Trial
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CLINICAL_TRIALS study record update · 2024-06-26Effect of Adenosine 2A Receptor Agonist Regadenoson on Microvascular Blood Flow in Sickle Cell Anemia
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CLINICAL_TRIALS study record update · 2024-06-24Prospective, Observational Study in Sickle Cell Disease Patients on Crizanlizumab Treatment in Middle East Countries and India (SPOTLIGHT)
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CLINICAL_TRIALS study record update · 2024-06-21Validation of the English Version of the Pain Interference Index and the Pain Rating Scale in Children, Adolescents, and Adults With Chronic Illness and Their Parents
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CLINICAL_TRIALS study record update · 2024-06-21Impact of a Pediatric-adult Care Transition Program on the Health Status of Patients With Sickle Cell Disease - A Randomized Controlled Trial
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CLINICAL_TRIALS study record update · 2024-06-17ASH Research Collaborative Data Hub Protocol: A Multi-Center Data Hub of Individuals Living With Hematologic Disease
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CLINICAL_TRIALS study record update · 2024-06-13Abatacept for Graft Versus Host Disease Prophylaxis After Hematopoietic Stem Cell Transplantation for Pediatric Sickle Cell Disease: a Sickle Transplant Alliance for Research Trial
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CLINICAL_TRIALS study record update · 2024-06-13Allogeneic Stem Cell Transplant to Induce Mixed Donor Chimerism in Patients With Sickle Cell Disease and Thalassemia
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CLINICAL_TRIALS study record update · 2024-06-10An Intrapatient Single Dose and Multiple Ascending Dose Study to Evaluate the Pharmacokinetics, Safety, Tolerability, and Pharmacodynamics of GBT021601, a Hemoglobin S Polymerization Inhibitor, in Participants With Sickle Cell Disease (SCD)
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CLINICAL_TRIALS study record update · 2024-06-04Evaluation of Low-cost Techniques for Detecting Sickle Cell Disease and β-thalassemia in Nepal and Canada
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CLINICAL_TRIALS study record update · 2024-06-03Clinical Study on the Safety and Efficacy of a Single Intravenous Dose of CRISPR/Cas9-Edited Autologous CD34+ Hematopoietic Stem/Progenitor Cells (BRL-101) in the Treatment of Sickle Cell Disease
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CLINICAL_TRIALS study record update · 2024-05-28A Multicenter, Randomized, Double Blind, Placebo Controlled Study to Evaluate Safety and Efficacy of Orally Administered NUV001 Nutraceutical Supplement in Sickle Cell Disease Patients.
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CLINICAL_TRIALS study record update · 2024-05-28Effect of NUV001 Supplementation for 120 Days in Patients Suffering From Sickle Cell Disease (SCD) S Homozygous (SS) Genotype: A Pilot Study
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CLINICAL_TRIALS study record update · 2024-05-17Red Blood Cell - IMProving trAnsfusions for Chronically Transfused Recipients (RBC-IMPACT)
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CLINICAL_TRIALS study record update · 2024-05-16A Prospective, Randomized Controlled Study to Evaluate the Effects of Daily Low Dose Aspirin in Pregnant Women With Sickle Cell Disease When Initiated at the First Trimester Versus the Second Trimester of the Gestational Period
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CLINICAL_TRIALS study record update · 2024-05-13A Phase II Stratified Trial to Assess Haploidentical T-depleted Stem Cell Transplantation in Patients With Sickle Cell Disease With no Available Sibling Donor
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CLINICAL_TRIALS study record update · 2024-05-10Pilot Study to Assess Patients' and Health Workers' Needs Involved in Sickle Cell Disease Management
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CLINICAL_TRIALS study record update · 2024-05-07A Single-Site Tissue Repository Providing Annotated Biospecimens for Approved Investigator-directed Biomedical Research Initiatives
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CLINICAL_TRIALS study record update · 2024-05-06Hydroxyurea Adherence for Personal Best in Sickle Cell Treatment: HABIT