Records containing: Sickle Cell Disease
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CLINICAL_TRIALS study record update · 2024-11-19Age of Blood in Sickle Cell Transfusion -The Effects of Phosphotidylserine Expression on Older Red Cell Units in Adults With Sickle Cell Disease
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CLINICAL_TRIALS study record update · 2024-11-18The Use of Intranasal (IN) Ketamine for Pain Control in Patients with Sickle Cell Disease and Vaso-occlusive Episode (VOE) in the Pediatric Emergency Department
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CLINICAL_TRIALS study record update · 2024-11-15The Role of Red Cell Characteristics, Angiogenesis, Viscosity and Oxygenation in the Pathophysiology of Sickle Cell Related Retinopathy
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CLINICAL_TRIALS study record update · 2024-11-14FLOWER: Following Longitudinal Outcomes With Epidemiology for Rare Diseases
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CLINICAL_TRIALS study record update · 2024-11-05Lentiviral Vector Gene Therapy in Sickle Cell Disease Using Autologous CD34+ Hematopoietic Stem Cells Collected Via Apheresis and Modified With a Lentiviral Vector
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CLINICAL_TRIALS study record update · 2024-10-30Cerebrovascular Reserve and White Matter Disease in Patients with Chronic Anemia
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CLINICAL_TRIALS study record update · 2024-10-29Decision-Making and Quality of Life Surrounding Hematologic Disease and Gene Therapy
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CLINICAL_TRIALS study record update · 2024-10-29SEG-2022-01 Patient Characteristics and Treatment Patterns From Early Crizanlizumab Use in Real-world Setting: Preliminary Analysis From Select Sickle Cell Centers
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CLINICAL_TRIALS study record update · 2024-10-29Disease Characteristics and Treatment Patterns of Patients With Sickle Cell Disease in Globin Research Network for Data and Discovery (GRNDaD) Registry
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CLINICAL_TRIALS study record update · 2024-10-28Use of Heart Rate Variability (HRV) Biofeedback for Symptom Management Among Sickle Cell Patients: Pilot Intervention
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CLINICAL_TRIALS study record update · 2024-10-28A Prospective Open Label, Pharmacokinetic Study of an Oral Hydroxyurea Solution in Children With Sickle Cell Anemia.
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CLINICAL_TRIALS study record update · 2024-10-24Pre-Transplant Immunosuppression and Related Haploidentical Hematopoietic Cell Transplantation for Patients With Severe Hemoglobinopathies
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CLINICAL_TRIALS study record update · 2024-10-08A Phase 1/2 Study Evaluating Gene Therapy by Transplantation of Autologous CD34+ Stem Cells Transduced Ex Vivo With the LentiGlobin BB305 Lentiviral Vector in Subjects With Severe Sickle Cell Disease
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CLINICAL_TRIALS study record update · 2024-09-24A Study to Compare Bone Marrow Transplantation to Standard Care in Adolescents and Young Adults With Severe Sickle Cell Disease (BMT CTN 1503)
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CLINICAL_TRIALS study record update · 2024-09-19A Phase 2a Randomized, Double-Blind, Placebo-Controlled Study to Characterize the Pharmacokinetics and Pharmacodynamics of Rifaximin Novel Formulations in Patients With Sickle Cell Disease
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CLINICAL_TRIALS study record update · 2024-09-03LCI-HEM-SCD-ST3P-UP-001: A Comparative Effectiveness Study of Peer Mentoring [PM] Versus Structured Transition Education Based Intervention [STE] for the Management of Care Transitions in Emerging Adults With Sickle Cell Disease (SCD)
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CLINICAL_TRIALS study record update · 2024-08-30Ketorolac Dosing for Acute Vaso-Occlusive Crisis in Pediatric Patients With Sickle Cell Disease
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CLINICAL_TRIALS study record update · 2024-08-27ESCORT-HU Extension: European Sickle Cell Disease Cohort - Hydroxyurea - Extension
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CLINICAL_TRIALS study record update · 2024-08-23Early Identification and Intervention Of Developmental Delay Among Infants And Toddlers With Sickle Cell Disease Using the Sickle Cell Caregiver Collaboration for Child Development (SCCCD) Intervention
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CLINICAL_TRIALS study record update · 2024-08-22Development and Evaluation of an Information Management System and Communication System for Population-wide Point-of-care Infant Sickle Cell Disease Screening
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CLINICAL_TRIALS study record update · 2024-08-16SMYLS: A Self-management Program for Youth Living With Sickle Cell Disease
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CLINICAL_TRIALS study record update · 2024-08-09An Open Label, Single Arm, Multicenter Study to Evaluate the Effect of Voxelotor on Cerebral Blood Flow and Neurocognitive Function in Adolescents and Adults With Sickle Cell Disease
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CLINICAL_TRIALS study record update · 2024-08-09Vitamin D for Sickle-cell Respiratory Complications
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CLINICAL_TRIALS study record update · 2024-08-07Nonmyeloablative Haploidentical Peripheral Blood Mobilized Hematopoietic Precursor Cell Transplantation for Sickle Cell Disease
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CLINICAL_TRIALS study record update · 2024-07-31Clinical Study to Evaluate the Safety and Efficacy of Single Dose Intravenous Infusion of CRISPR/Cas9-edited Autologous CD34 + Hematopoietic Stem/Progenitor Cells (BRL-101) in the Treatment of Severe Sickle Cell Disease