Facioscapulohumeral Muscular Dystrophy
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CLINICAL_TRIALS trial_result · 2025-09-18Clinical Trial Update: FSHD Molecular Characterization
The clinical trial NCT06096441, studying molecular characterization of facioscapulohumeral muscular dystrophy, has been terminated.
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CLINICAL_TRIALS research · 2025-09-10Clinical Trial Update: Development and Validation of the FBIndex to Determine the Risk of Falls for Patients With Neuromuscular Disorders
Development and validation of the FBIndex, a tool to assess falls risk in patients with various neuromuscular disorders.
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CLINICAL_TRIALS research · 2025-09-10Clinical Trial Update: Imaging and Gait Analysis in FSHD Patients
Clinical trial update indicating ongoing enrollment by invitation for an imaging and gait analysis study in patients with facioscapulohumera…
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CLINICAL_TRIALS research · 2025-08-22Clinical Trial Update: Gait Analysis Parameter and Upper Limb Evaluation in Adult Patients With Neurological or Metabolic Pathology [NA]
This clinical trial update describes the assessment of gait analysis parameters and upper-limb evaluation in adults with various neurologica…
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CLINICAL_TRIALS research · 2025-07-09Clinical Trial Update: Magnetic Resonance Imaging and Spectroscopy Biomarkers for Facioscapulohumeral Muscular Dystrophy
Update on a clinical study investigating MRI and MR spectroscopy biomarkers for facioscapulohumeral muscular dystrophy; the trial is current…
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CLINICAL_TRIALS research · 2025-04-27Clinical Trial Update: Personalized Training for People With Rare Neuromuscular Disorders [NA]
A clinical trial update announcing recruitment for personalized training programs for people with rare neuromuscular disorders. The study ta…
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CLINICAL_TRIALS research · 2025-04-24Clinical Trial Update: Motor Outcomes to Validate Evaluations in FSHD (MOVE FSHD)
A new clinical trial called MOVE FSHD is recruiting to validate motor outcome measures in facioscapulohumeral muscular dystrophy. The sponso…
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CLINICAL_TRIALS research · 2025-04-08Clinical Trial Update: Muscle MRI Outlining of Neuromuscular Diseases Using Artificial Intelligence
This clinical trial update describes a study using artificial intelligence to outline neuromuscular disease features on MRI. The conditions …
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CLINICAL_TRIALS research · 2025-04-04Clinical Trial Update: Ten Year Follow-up in FSHD: the FOCUS 3 Study
This update covers the FOCUS 3 study for facioscapulohumeral muscular dystrophy and indicates that recruitment is ongoing for its ten-year f…
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CLINICAL_TRIALS research · 2025-01-13Clinical Trial Update: Magnetic Resonance Imaging and Ultrasound Comparison With Load Evaluation
A clinical trial update describes a study comparing magnetic resonance imaging and ultrasound with load evaluation in patients with faciosca…
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CLINICAL_TRIALS trial_result · 2024-12-20Clinical Trial Update: Phase 2 Open-label Extension Study of AOC 1020 in Participants with Facioscapulohumeral Muscular Dystrophy (FSHD) [Phase 2]
Phase 2 open-label extension trial update for AOC 1020 in facioscapulohumeral muscular dystrophy (FSHD) by Avidity Biosciences; enrollment i…
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CLINICAL_TRIALS research · 2024-12-02Clinical Trial Update: Testing a Tailored Home Exercise Program to Reduce Pain and Fatigue in Patients with FSHD. [NA]
Clinical trial update for a tailored home exercise program aimed at reducing pain and fatigue in people with facioscapulohumeral muscular dy…
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CLINICAL_TRIALS trial_result · 2024-09-19Clinical Trial Update: The Risk of Falls Index for Patients With Neuromuscular Disorders
A completed trial evaluating a Falls Index to assess fall risk in patients with neuromuscular disorders, including Inclusion Body Myositis, …
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CLINICAL_TRIALS research · 2024-07-24Clinical Trial Update: Disease Burden and Living Situation of Patients With Facioscapulohumeral Muscular Dystrophy
This clinical trial update describes a study assessing disease burden and living situations for patients with facioscapulohumeral muscular d…
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CLINICAL_TRIALS trial_result · 2024-07-10Clinical Trial Update: Efficacy and Safety of Losmapimod in Subjects With Facioscapulohumeral Muscular Dystrophy (FSHD) [Phase 2]
Phase 2 results and safety data for Losmapimod in patients with Facioscapulohumeral Muscular Dystrophy have been posted after the study comp…
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CLINICAL_TRIALS research · 2024-05-09Clinical Trial Update: The United Kingdom Facioscapulohumeral Muscular Dystrophy Patient Registry
A UK patient registry for facioscapulohumeral muscular dystrophy is currently recruiting participants to collect observational data.
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CLINICAL_TRIALS trial_result · 2023-12-22Clinical Trial Update: Study to Evaluate the Long-Term Safety, Tolerability, and Biological Activity of ATYR1940 in Participants With Limb Girdle and Facioscapulohumeral Muscular Dystrophy (FSHD) [Phase 1, Phase 2]
Phase 1/2 trial evaluating ATYR1940 for safety, tolerability, and biological activity in facioscapulohumeral muscular dystrophy and limb gir…
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CLINICAL_TRIALS trial_result · 2023-10-19Clinical Trial Update: Evaluate Safety and Biological Activity of ATYR1940 in Participants With Early Onset Facioscapulohumeral Muscular Dystrophy [Phase 1, Phase 2]
Phase 1/2 clinical trial evaluating safety and biological activity of ATYR1940 in early-onset facioscapulohumeral muscular dystrophy (FSHD) …
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CLINICAL_TRIALS trial_result · 2023-10-19Clinical Trial Update: Evaluate Safety and Biological Activity of ATYR1940 in Participants With Limb Girdle Muscular Dystrophy 2B (LGMD2B) and Facioscapulohumeral Muscular Dystrophy (FSHD) [Phase 1, Phase 2]
Phase 1/2 trial evaluating ATYR1940 for safety and biological activity in LGMD2B and FSHD has completed with results posted.
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CLINICAL_TRIALS research · 2023-08-18Clinical Trial Update: Safety, Tolerability, Pharmacokinetics (PK), and Activity of ATYR1940 in Participants With Muscular Dystrophy - Study Extension [Phase 1, Phase 2]
Clinical trial extension study examining safety, tolerability, pharmacokinetics, and activity of ATYR1940 in participants with facioscapuloh…
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CLINICAL_TRIALS trial_result · 2023-05-16Clinical Trial Update: Study of Testosterone and rHGH in FSHD [Phase 1]
Phase 1 clinical trial evaluating testosterone and recombinant human growth hormone in facioscapulohumeral muscular dystrophy has completed;…
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CLINICAL_TRIALS trial_result · 2021-08-11Clinical Trial Update: Safety, Tolerability, Pharmacokinetics, and Biological Activity of ATYR1940 in Adult Participants With Muscular Dystrophy [Phase 1, Phase 2]
Phase 1/2 trial update for ATYR1940 in adults with facioscapulohumeral muscular dystrophy reports safety, tolerability, pharmacokinetics, an…
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CLINICAL_TRIALS trial_result · 2021-06-02Clinical Trial Update: Extension Study to Evaluate the Long-Term Effects of ACE-083 in Patients With Facioscapulohumeral Muscular Dystrophy (FSHD) and Charcot-Marie Tooth (CMT) Disease Types 1 and X (CMT1 and CMTX) [Phase 2]
Phase 2 extension study evaluating long-term effects of ACE-083 in facioscapulohumeral muscular dystrophy (FSHD) and Charcot-Marie-Tooth dis…
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CLINICAL_TRIALS trial_result · 2021-04-22Clinical Trial Update: Study of ACE-083 in Patients With Facioscapulohumeral Muscular Dystrophy (FSHD) [Phase 2]
Phase 2 trial of ACE-083 in facioscapulohumeral muscular dystrophy was terminated; results posted in 2021.
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CLINICAL_TRIALS trial_result · 2019-11-05Clinical Trial Update: Bone Health in Facioscapulohumeral Muscular Dystrophy
Completed clinical trial on bone health in facioscapulohumeral muscular dystrophy; results posted in 2019.